Author

Topic: Save This Child's Life - URGENT!!! NO DONATIONS. JUST A SIGNATURE (Read 3625 times)

legendary
Activity: 1176
Merit: 1280
May Bitcoin be touched by his Noodly Appendage
Quote
The FDA also observed that Burzynski had denied patients informed consent by not informing of extra costs that they might incur during treatment and that he could not account for his stock of the investigational drug. Lastly, the FDA observed: "Your [...] tumor measurements initially recorded on worksheets at baseline and on-study treatment [...] studies for all study subjects were destroyed and are not available for FDA inspectional review," meaning that there is no way for the FDA to verify either initial tumor sizes or any effect that the antineoplastons might have had.
Classy
newbie
Activity: 42
Merit: 0
Hi Guys,
Before you close the tab, this isn't a charity plea!
This was sent to me in an email asking me to sign a petition to help save this Child's life.

Refael Elisha Cohen, a six year old from Houston TX, was diagnosed with brain cancer. He has gone through many treatments and unfortunately, doctors have now given him one last resort.
The only possibility of saving his life is  by giving him Antineoplaston therapy. However, this therapy is currently under FDA inspection and it'll be too late for him when it is finally approved.
The FDA has the power to approve a "compassionate use exemption" so Refael Elisha can undergo this therapy before it is fully approved to try and save his life.

I know that the community here is large. We have thousands of users of different cypto-currencies here. All I ask is that you take a minute out of your schedule to sign this White House Petition to help give this brave and strong child a chance of life.

The petition can be found here: https://petitions.whitehouse.gov/petition/authorize-fda-grant-compassionate-use-exemption-refael-elisha-cohen-antineoplaston-therapy/BVSP1ZkW

Another 46000 signatures are needed by January the 2nd.

We alone on bitcointalk have the power to ensure that the petition reaches 100k signatures in order to save this Child.

Please spread the word, and post below if you have signed it. No matter what race or religion you are, we are all humans and we all have the right to live...

Many Thanks

- AT101ET

https://petitions.whitehouse.gov/petition/authorize-fda-grant-compassionate-use-exemption-refael-elisha-cohen-antineoplaston-therapy/BVSP1ZkW


Just looked a the petition and it's over the needed amount! Good job
legendary
Activity: 3122
Merit: 1348
It means, it will now be reviewed by White House officials.
They have the final say and will either give it the all clear or reject it.
legendary
Activity: 1176
Merit: 1280
May Bitcoin be touched by his Noodly Appendage
PETITION HAS BEEN FULFILLED!!!
Many thanks to all those who signed it.
Have a wonderful Christmas (to those that celebrate) and a happy, healthy and successful year.

Thanks once again. Smiley

WE DID IT!!!  Smiley Smiley Smiley

What does "has been fulfilled" mean?
Is this the thing where the White House MUST answer when enough votes?
legendary
Activity: 3122
Merit: 1348
PETITION HAS BEEN FULFILLED!!!
Many thanks to all those who signed it.
Have a wonderful Christmas (to those that celebrate) and a happy, healthy and successful year.

Thanks once again. Smiley

WE DID IT!!!  Smiley Smiley Smiley
legendary
Activity: 3122
Merit: 1348
ONLY 500 SIGNATURES NEEDED!!!

WE WILL DO IT.

COME ON GUYS Smiley
legendary
Activity: 3122
Merit: 1348
Only a few signatures left. Almost there... BUMP!
member
Activity: 90
Merit: 10
Hmm, tough call.  Based on what I've read about the guy that runs this clinic it does sound like he's a scammer that preys on the terminally ill's hopes, in order to stay in business.  But the kid seems real enough...  I guess if his parents want to spend their money that's their business.  But I don't necessarily want to help the doctor get more money, if he really is a charlatan.  Tough call...  Screw it, I'll sign it, it looks like it's a one time authorization for this particular kid.  Signed...
sr. member
Activity: 434
Merit: 250
Bumping up again.
Thanks to everyone who's helped so far.
I've now created a post on reddit as well, so thanks for the advice.
Only 29,000 more signatures needed. A big drop from the 55,000 needed when this thread was started.

can you link us to the reddit thread? i'd like to see what kind of an impact that has had.

20,000 signatures sign i signed it a few days ago. at this rate, it looks like it will go through. we'll have to see if anything will really happen though.

another idea: you could contact a talk show, such as ellen.. to get them to cover this story. that would probably put you over 150,000 even.
legendary
Activity: 3122
Merit: 1348
Bumping up again.
Thanks to everyone who's helped so far.
I've now created a post on reddit as well, so thanks for the advice.
Only 29,000 more signatures needed. A big drop from the 55,000 needed when this thread was started.
legendary
Activity: 3122
Merit: 1348
You are free to debate it.
BUT, if you don't believe in it, don't try to persuade others not to sign up.
And which sadistic people would do that?

I don't know this kid, but his story has been going round, and I don't think for a second that any family on Earth would make that up.

For all those trying to promote this, I thank you.
My gratitude may not be much, but you will be rewarded one day Smiley
legendary
Activity: 2912
Merit: 6403
Blackjack.fun
Guys, I respect your views.
However, please don't make this a discussion thread whethe you believe in it or not.
I'm sure the parents and doctors have spoken about it greatly and this really is the last resort.
In addition, I'm certain the parents wouldn't force anything on their dying son without discussing it with him first. Yes he's 6, but he understands that's he's sick, and I'm pretty sure he's able to make a decision over a small chance he has of living and dying.
THIS IS NOT AN APPEAL.
$92k has already been donated for his treatment.
Whether you believe in it or not, this is the child's only hope, and I'm sure if anyone here was in the same or similar situation (which should never happen), I'm sure you'd all do the same.

Thanks


Wait!.
We are free to debate and talk about this. You can't force us to either sign up or walk away with our mouths shout.
Reading some posts I do hope this isn't a clever elaborated scam to prove this treatment works on a healthy child!
member
Activity: 112
Merit: 10
Ill see if I can share this more!
Bump
hero member
Activity: 826
Merit: 1000
°^°
mh, that activation mail seems to got lost somewhere
full member
Activity: 182
Merit: 100
The Crypto Analyst
Retweet and favorite this tweet. It's already has 20/9

34,000 signatures left. We will not lose this battle.

https://twitter.com/usdbtc/status/410900016837181441
legendary
Activity: 1022
Merit: 1001
I'd fight Gandhi.
Will give this a bump as well.

C'mon guys, bring in those signatures!
sr. member
Activity: 434
Merit: 250
btw, have you tried posting it on reddit? that might get more than enough signatures. it's possibly front page material right there. if that were the case, you'd end up getting well over 100,000 votes.
legendary
Activity: 3122
Merit: 1348
BUMP.
Trying to keep this Post up.
Your signatures are needed desperately!
legendary
Activity: 3122
Merit: 1348
Yes, that's true.
But if someone doesn't believe in it and genuinely has something against it, then that is up to them. However, I ask that they do not post their views if its only going to dissuade others.
This is about saving someones life, not a national debate.

Thanks
sr. member
Activity: 434
Merit: 250
Guys, I respect your views.
However, please don't make this a discussion thread whethe you believe in it or not.
I'm sure the parents and doctors have spoken about it greatly and this really is the last resort.
In addition, I'm certain the parents wouldn't force anything on their dying son without discussing it with him first. Yes he's 6, but he understands that's he's sick, and I'm pretty sure he's able to make a decision over a small chance he has of living and dying.
THIS IS NOT AN APPEAL.
$92k has already been donated for his treatment.
Whether you believe in it or not, this is the child's only hope, and I'm sure if anyone here was in the same or similar situation (which should never happen), I'm sure you'd all do the same.

Thanks

well, if you want people to sign the petition, and they are discussing about the validity of what the petition is for.. i think it's proper to mention.
legendary
Activity: 3122
Merit: 1348
Guys, I respect your views.
However, please don't make this a discussion thread whethe you believe in it or not.
I'm sure the parents and doctors have spoken about it greatly and this really is the last resort.
In addition, I'm certain the parents wouldn't force anything on their dying son without discussing it with him first. Yes he's 6, but he understands that's he's sick, and I'm pretty sure he's able to make a decision over a small chance he has of living and dying.
THIS IS NOT AN APPEAL.
$92k has already been donated for his treatment.
Whether you believe in it or not, this is the child's only hope, and I'm sure if anyone here was in the same or similar situation (which should never happen), I'm sure you'd all do the same.

Thanks
legendary
Activity: 1022
Merit: 1001
I'd fight Gandhi.
I do not support this petition, but I support right as an american to do as they wish and be free. If the family and their doctors say this is the only means left to heal their child, then I do not believe the government should restrict them from making that decision because the government thinks it's not a real treatment.
The doctors aren't saying that, and no real doctor ever would. And nobody has a right to endanger (or, in this case, potentially slightly shorten) the life of a child by using dangerous "treatments" that are proven to have no benefit. If the family has been told that this "treatment" is either safe or effective, they have been lied to; and for the clinic use this lie to sell their "treatment" (or anything else) is fraud, and nobody has a right to commit a fraud either, especially against a family with a dying child.

It's like the government saying "God isn't real, so we are going to ban people praying for other people because it's not a legitimate treatment". Whether or not they think it's a legitimate treatment shouldn't ban others from using it.
I'm not suggesting that either. If people want to pray for the dying, that okay. But if they want to sell their prayers, and they do this by telling dying people and their families that the prayers they're selling will cure them, that's not okay, and such practices should be banned.
Going from what OP said, I am under the impression that the family's doctors have said that this is the last resort, and that there is not other way of saving him:
 
He has gone through many treatments and unfortunately, doctors have now given him one last resort.
The only possibility of saving his life is  by giving him Antineoplaston therapy.

As for paying for prayers, I agree with you. Paying for a service which isn't scientifically proven is pretty scammy. But I don't believe the government should ban you from spending your money how you wish. But I do believe that the government should be cautious about people not taking care of their kids (DHS, etc).

Worry about side effects in this situation is kind of dumb since the kid is going to be dead soon anyway. You can't get more dead than... dead. If their last resort to save their child through an unscientifically proven experimental procedure, than I see no reason why the government should ban you from possibly saving your child. Whether or not you are paying money for this service.

"No, you can't save your kid through one of our approved methods. Only our ways work, and you are banned from using anything else. Sucks about your kid. But that's the way it goes because we said so."
legendary
Activity: 4494
Merit: 3178
Vile Vixen and Miss Bitcointalk 2021-2023
I do not support this petition, but I support right as an american to do as they wish and be free. If the family and their doctors say this is the only means left to heal their child, then I do not believe the government should restrict them from making that decision because the government thinks it's not a real treatment.
The doctors aren't saying that, and no real doctor ever would. And nobody has a right to endanger (or, in this case, potentially slightly shorten) the life of a child by using dangerous "treatments" that are proven to have no benefit. If the family has been told that this "treatment" is either safe or effective, they have been lied to; and for the clinic use this lie to sell their "treatment" (or anything else) is fraud, and nobody has a right to commit a fraud either, especially against a family with a dying child.

It's like the government saying "God isn't real, so we are going to ban people praying for other people because it's not a legitimate treatment". Whether or not they think it's a legitimate treatment shouldn't ban others from using it.
I'm not suggesting that either. If people want to pray for the dying, that okay. But if they want to sell their prayers, and they do this by telling dying people and their families that the prayers they're selling will cure them, that's not okay, and such practices should be banned.
legendary
Activity: 1022
Merit: 1001
I'd fight Gandhi.
If you support this petition, then you support this vile scam and you are an evil person. Angry
I do not support this petition, but I support right as an american to do as they wish and be free. If the family and their doctors say this is the only means left to heal their child, then I do not believe the government should restrict them from making that decision because the government thinks it's not a real treatment.

It's like the government saying "God isn't real, so we are going to ban people praying for other people because it's not a legitimate treatment". Whether or not they think it's a legitimate treatment shouldn't ban others from using it.

Just my 2 satoshis...
legendary
Activity: 4494
Merit: 3178
Vile Vixen and Miss Bitcointalk 2021-2023
The FDA never pulled their approval for this "treatment" in 2012, because they never approved it in the first place. They issued an enforcement notice in 2012 to the Burzynski Clinic after they failed to comply with a previous ban on promoting this "treatment". The reason for the original ban is that every single independent study has shown that the "treatment" provides no benefit whatsoever, and in fact has the potential to causes serious side-effects. It is nothing more than a scam to separate dying people and their families from their wallets. If you support this petition, then you support this vile scam and you are an evil person. Angry
member
Activity: 67
Merit: 10
I love this so much. Inspiring. I am In.
BNBL
sr. member
Activity: 434
Merit: 250
i was a bit lazy to do it, but then i felt bad for being too lazy to click on "forgot my password" and type my email in. i doubt the white house will really do anything, unless they are desperate for PR. still though, better to sign it than not. you might want to create a topic on reddit too, you could possibly get well over 100,000 signatures.
legendary
Activity: 2590
Merit: 2156
Welcome to the SaltySpitoon, how Tough are ya?
I also will join.

Seems sort of strange that in order to get them to allow an experimental procedure to be done, that they would have to get thousands of strangers signatures? You would think that the parents would just be allowed to sign a waiver or something releasing the hospital of liability in case something went wrong, and the hospital would just have to get approval by proving that they have tried everything else.
legendary
Activity: 3122
Merit: 1348
Added to my sig
Code:
[b][color=red]Save a child's life! (Not asking for money) Vote on Whitehouse.gov[/color][/b] --> https://bitcointalk.org/index.php?topic=367544

Thanks. You guys are all amazing!
legendary
Activity: 1022
Merit: 1001
I'd fight Gandhi.
Added to my sig
Code:
[b][color=red]Save a child's life! (Not asking for money) Vote on Whitehouse.gov[/color][/b] --> https://bitcointalk.org/index.php?topic=367544
legendary
Activity: 3122
Merit: 1348
DONE! Doing a great job OP considering you got this petition in one of your mails.
You can also put its link in your sig if you want.

Will do. Thanks for the suggestion and for signing Smiley
full member
Activity: 210
Merit: 100
Crypto News & Tutorials - Coinramble.com
DONE! Doing a great job OP considering you got this petition in one of your mails.
You can also put its link in your sig if you want.
full member
Activity: 182
Merit: 100
The Crypto Analyst
full member
Activity: 182
Merit: 100
The Crypto Analyst
Done and shared
legendary
Activity: 3122
Merit: 1348
If you want more views you must state in the title you're not asking for donations

I will do. Thanks for the advice.
If you guys could share the link, I'd be most grateful.
full member
Activity: 169
Merit: 100
legendary
Activity: 1176
Merit: 1280
May Bitcoin be touched by his Noodly Appendage
If you want more views you must state in the title you're not asking for donations
legendary
Activity: 3122
Merit: 1348
Again thanks to you all.
This just goes to show how great the bit coin community is.
And yes, it's not proven yet. However, as you said, it's his only chance...
When it comes to life and death, I'm sure chances are willing to be taken.

Thanks again... Smiley
legendary
Activity: 1022
Merit: 1001
I'd fight Gandhi.
Antineoplaston therapy from Burzynski seems to be an "unproven cancer treatment" method. But if it's the only way of saving the the kids' life, you've got my signature. Smiley
full member
Activity: 245
Merit: 124
For some reason it is telling me that I have already signed it even though I have not. Best of luck anyway.
legendary
Activity: 3122
Merit: 1348
Done Grin

Thanks so much. You could have saved someone's life.
I'd give you rep if I knew how to on here.
member
Activity: 84
Merit: 10
legendary
Activity: 3122
Merit: 1348
Hi Guys,
Before you close the tab, this isn't a charity plea!
This was sent to me in an email asking me to sign a petition to help save this Child's life.

Refael Elisha Cohen, a six year old from Houston TX, was diagnosed with brain cancer. He has gone through many treatments and unfortunately, doctors have now given him one last resort.
The only possibility of saving his life is  by giving him Antineoplaston therapy. However, this therapy is currently under FDA inspection and it'll be too late for him when it is finally approved.
The FDA has the power to approve a "compassionate use exemption" so Refael Elisha can undergo this therapy before it is fully approved to try and save his life.

I know that the community here is large. We have thousands of users of different cypto-currencies here. All I ask is that you take a minute out of your schedule to sign this White House Petition to help give this brave and strong child a chance of life.

The petition can be found here: https://petitions.whitehouse.gov/petition/authorize-fda-grant-compassionate-use-exemption-refael-elisha-cohen-antineoplaston-therapy/BVSP1ZkW

Another 46000 signatures are needed by January the 2nd.

We alone on bitcointalk have the power to ensure that the petition reaches 100k signatures in order to save this Child.

Please spread the word, and post below if you have signed it. No matter what race or religion you are, we are all humans and we all have the right to live...

Many Thanks

- AT101ET

https://petitions.whitehouse.gov/petition/authorize-fda-grant-compassionate-use-exemption-refael-elisha-cohen-antineoplaston-therapy/BVSP1ZkW
Jump to: