Can you describe the sensations in more detail? Do you experience pain of any burning or aching variety? Are there any visible abnormalities, or do you look comoetely healthy?
Depending on the intensity, the pain is similar to that of a bite from a bug, for bugs that bite. Mosquito bites are usually painless, and so that is not much of a comparison. Perhaps in addition a bite sensation, a pinching sensation may be helpful to understand, each pinch sensation having a variable intensity, in which the most intense are quite painful in the sense that the pain is sudden or instant and with touching, it is relieved and the remainder of pain is mental or psychological. I do not feel any burning or itching besides that of the immediate kind of itching sensation related to that of pinching or nibbling. The itching does not persist.
Prior to December 9th (see
this) I did not have any abnormalities whatsoever. Thus, for approximately seven months there were no noticeable signs other than perhaps my hair, which at this time I feel is a very related and important aspect of my health issue. I believe it is related, but am not entirely certain. However, on December 9th, I endured a most intense nibble sensation and during the minute after it happened I felt with my finger touching the affected area behind my right ear, as if something very tiny was working its way into my skin. It produced a scab like wound that lasted for a while. That wound is gone now. There are a couple other irregularities and also some other undocumented oddities, but I do not feel they are useful, reliable, worthy, or visually revealing enough to assume perspective of physical health issue. Though, perhaps microscopically relative to bacteria or fungii there may be noticeable physical defects, perhaps especially prominently in my hair. I feel many nibbles occur on my head and from my hair. I am very worried about my hair/head as if there is something up there. I cannot see what goes on up there.
I look healthy overall I think... though, my physical appearance is perhaps deteriorating kind of like the comparison of mugshots of a person over the several year span of their criminality which portrays the deteriorating facial evolution. Though, my evolution of facial appearance may not seem unhealthy as of yet.
How long have you had this?
Since approximately February of 2011.
Has it increased in intensity over time?
Kind of. Towards the beginning it was minimal, but gradually and perhaps quickly (a month or two?) grew in intensity or frequency in which since then the intensities or frequencies still fluctuate perhaps sporadically or it seems kinf of patternistic also...a bit. It is patternistic in the sense that during both of my nibble logs I was anticipating another swarm of sensations (what I'm experiencing right now, actually, on the surface of my head, over and over and over, 1-20 second intervals), but there was no swarm. I had the idea that swarms would be daily, but it seems more patternistic that swarms may skip a day or two. But then sometimes I endure two or more swarms in a single day. Regardless of consideration of patterns, the nibbles are constant in which the interval varies from 0 seconds to maybe at the very most ten minutes, but generally 20-30 seconds
Does it wax and wane?
I'm not sure what this means.
Did it begin in the gnital region or lower body region, or pretty much evwrywhere ( that is, what is the pattern of spreading )?
No. And also I haven't had sexual intercourse or other sexual relations or intimacy (other than hugging a couple of people) in approximately five years.
Do you find any relief in symptoms from relaxing in a hot bath?
Definitely. I've been taking baths and long showers now practically twice a day because I need the relief. Though, also I have taken baths waiting to feel the sensations whilst under water to better determine perhaps the reality of whether the sensations are triggered externally or internally. Though recently a couple times I think I have felt the sensations while under water, I am not entirely certain and as of yet do not have any reliable evaluations related to under water other than that for the most part, it seems I am not affected under water.
Sorry for all the questions but I too have a disease that is very debilitating and no doctors were able to diagnose ( every test in the world came back negative, they ended up kicking me out of the hospital and telling me it was all "in my head").
Mm, no worries at all, and I appreciate the questions (though, also you can find answers to some from reading my journal, but maybe tl;dr type of effort is evolutionary or societally normal behavioral expectation now and though I am still writing tl;dr answers, they are directly affiliated with your effortfully typed questions asked on demand and easily locatable as opposed to having searching through prior historical documentation/information...history, it's just that...history. Repetition ftw!) as it helps to provide perhaps better searchability in the case others experience similar health issues, perhaps they may stumble upon my documentations and informations similarly to how I stumbled upon
others' experiences as well (and disappointingly, my attempt to participate there resulted in
censorship and bannage)
Maybe there is no connection here, but the point I need to make is to NOT GIVE UP keep researching, it is up to you to figure it out, you will find out the cause eventually. I lost all respect for doctors after my journey, and realize now that you are truely on your own to fight for your life.
Yeah, thanks. I realize that and in relation to my biases, that is the basis for my full disclosure and journalistic documentation. The health industry may keep privatized records on their patients. Similarly, I'm keeping open public records on my healths.
(Have you pissed off any powerful people or organizations?) You must lay out all the evidence before you decide and apply Occam's Razor. Which by the way, I always found funny. Because if people were to conspire, they would apply this principle and choose a method that would get discarded.
I have not. Thanks for Occam's Razor reference.
I guess even though I suggested my efforts are to be helpful for others than just myself, that may not be possible at all considering all humans health issues are unique and must be investigated separately...though, at least the information I provide as part of my journal and other discussions
may be useful.