Wow yahoo, I didnt know anything about this until I saw that charity auction by RickDeckard.
Really sorry to hear of your Heart troubles, I read all your posts and updates and its been a bit
of a roller coaster ride for you.
I can relate a little bit to your story because I have had a Heart issue for a good few years and
thankfully its well under control ATM. I can only echo what you say in that if anyone feels anything
slightly amiss they should not delay in getting things checked.
Hopefully now going forward things will settle down for you and you can build a new routine and
get back to some normality.
I will make a donation to the fund later today, You wont remember me because thousands
of people have been on your campaigns over the years, and I have been on a lot of yours
through the years, small bit of payback is due for sure to help out with costs.
I'm sure there are lots who do not even visit the reputation section as it can be a little bit of a drama fest at times. I do not know what your heart issues have been, but if ya need an ear to talk to feel free to pm me. I will not share info if that's a worry for you. I hope things start getting normal for me as well, time will tell.
Your story makes me remember that this is why I believe that free Education and free Healthcare are some of the essential pillars that one society should have their foundations on. To imagine the costs that you'll endure (and you family) during this period of your life is something that I can't really imagine being myself an European... I honestly wasn't aware of your situation but icopress directed me here and while I know it's not much, I'll be donating some funds over to your BTC address (or let me say @1miau will eventually (Thank you again!)) and I'm also running a charity auction[1] whose funds will be directed sent over to your address.
I really hope that everything goes well with the procedure and do let us know whenever you're in a safer zone regarding your health!
[1]
https://bitcointalksearch.org/topic/m.61725755I would merit this post but you have gotten the max merits I can send from the other thread. Really appreciate you guys and your auction for my benefit. I cannot thank you all enough for the kindness.
[/quote]
Merited RickRecard on your behalf.
@Rickdecard if you don't mind I will be happy to wear your same charity auction signature ( even not being a consistent poster as I used to be in the past), please send me proper code in PM if you agree.
Keep strong Yahoo
[/quote]Thanks, i'm sure RickDeckard appreciates the merit and the offer. Pm for a faster response from him. I'm not sure how often he will read this thread. I also just replied on telegram.
Well doctors appointment came today. Loads of questions but overall he did make me feel a little better about everything. My transplant coordinator was present in the appointment as well. Their main concern for the day was how do I feel? Legitimate question I suppose being as 9 days ago I was sitting in the hospital.
Since my release last Sunday I have found myself on the floor 2x with dizzy spells. They're pretty intense for about a minute and my heart is usually pounding when they happen. Usually only lasts 30 seconds to a minute and passes. So far unexplainable as to how they happen or why. I had 0 spells the whole time in the hospital and tons prior to hospitalization. I mentioned the only change was they put me back on 1 medication (corlanor) but he didn't want to change any of my meds just yet.
We also discussed a little more about the balloon pump and how it may have given my heart the break it needed for my heart to sorta jumpstart itsself. For now I will stay on the transplant list at status 6 and have regular appointments every month or so. If I start feeling any different, contact them for a heart catheter and see where we go depending on the numbers.
Really nothing new to report other than what's above. We mainly focused on how I currently feel and let them know if that changes. I remain on the list and if things change, I don't have to go through all the testing for the transplant list. At least not for now. Still not sure if the heart pump is the answer or if something is being masked by the meds i was on and the machines they had me on. I suppose i'll really start feeling like shit if that's the case really soon though, so honestly hope I just continue to feel better day by day.
I will have to start cardiac rehab within the next few weeks. That should really push my body and let them know if I am improving or no. I'll obviously keep everyone updated if things change, but for now going to concentrate on being positive and working on getting stronger.
I understand that you may well not want to hear my input - nonetheless, I am going to give it based on the information that you provided... since this is a public thread and in some sense your situation has some general applicability for anyone having similar kinds of considerations - even though I am in agreement that it is quite likely that almost no two cases are going to be exactly alike, but there can be similarities, especially that heart issues are quite common, but sometimes if people might not know what is happening in their own health they could have similar symptoms, not know that they have heart issues or might have been diagnosed with something else (like a lung condition or circulatory problems) that might or might not end up impacting the heart.
It seems to me that sometimes when the doctors are meeting with you jointly, they are surely in a phase of collaboration within their various departments, and they might even be studying your case behind the scenes in order to attempt to figure out whether some sort of change in the course of action might be warranted, so for sure when you are giving them some details about the various symptoms that you are having and you are disclosing what kinds of foods you are eating, how many hours of sleep that you are getting and how much exercise (activities) you are doing (and they also might want to hear about stress that you are experiencing in your life, too), then the doctors from different specialties might have different questions that they want to ask you, and they might not know what follow-up questions that they might want to make sure that they are addressed unless they are in the room to hear your responses (thus the meeting with more than one doctor at a time, and of course, they are reporting back to other doctors who have specialties that have come up in your case and that are likely involved in your case).
I would imagine that most of the pacemakers and defibrillators have some abilities to track what is happening with them so they can analyze your various incidents of "dizziness" to see what is going on and if it rises to the level in which your body self corrects or if the pacemaker or defibrillator was triggered in order to help your body to correct the incident, and sometimes the incident will not show up on the measuring tools, even though you described it (and you might have told them the exact date and time that the incident happened).
If your implanted pacemaker/defibrillator does not have the features to report back specifics or if the specifics that it reports back are not showing symptoms that you are describing, they could elect to put you on either a 24-hour or a 7-day Holter monitor (like a EKG), which involves hooking up 3 leads or 5 leads.. and I think that the 5 lead ones are better, but there might be reasons to prefer a 3 lead monitor.. and then they would more accurately be able to see what is happening during some of those kinds of incidents.. and they also might not want to give you either of those Holter monitors until after you might be out on your own for a longer period of time and then they might measure your state of stability, and probably, they need a certain level of potential "heart related" incidents before the insurance company will even authorize paying for such a monitoring/measuring device to be prescribed.
I have 0 issues with you posting in this thread. Yes your posts are usually very long but mostly on topic and informative. I had issue with the 1 post as I felt that it was not completely on topic since noone knew what the measurement numbers were. Otherwise, you are perfectly fine posting in here.