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Topic: My story and where it is now..... - page 2. (Read 7176 times)

sr. member
Activity: 994
Merit: 441
February 06, 2023, 06:12:55 PM
I hope my condition keeps improving as well but my hopes aren't too high so far. I'll see what my doctor says next week and go from there. That's really about all that I can do at this point other than seek different or second opinions.
Always praying for you sir. You will definitely get well. But you will not be weak mentally and physically.  We hope to hear good news from you on Tuesday. You will be back among us as before. I again pray to my Lord for long life for you.

After knowing your physical condition from the doctor on Tuesday, you will immediately disclose it to us. We look forward to hearing your health report.
legendary
Activity: 3668
Merit: 6382
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February 06, 2023, 01:43:48 PM
I hope my condition keeps improving as well but my hopes aren't too high so far. I'll see what my doctor says next week and go from there. That's really about all that I can do at this point other than seek different or second opinions.

Try to get all the hearth scans and all the data you can to as many doctors as possible. There may be that your condition is something unusual and only few know how to deal with it. Make us of the internet. Losing hope is not the best course of action. I fear this saga will take more of your energy and money, but I really hope for a happy end.
hero member
Activity: 952
Merit: 541
February 06, 2023, 05:50:33 AM
Although I'm new around here and i just came across this thread i feel sad reading your story and i know that you are going through a lot but I want you to know that God is with you and that your difficult circumstance is only a curve in the road, not the endpoint. I'm sorry, but all I can do is pray that God give you and your family the strength you need to get through this trying time. I wish you'd get better soon.
Thank you, I hope my condition keeps improving as well but my hopes aren't too high so far. I'll see what my doctor says next week and go from there. That's really about all that I can do at this point other than seek different or second opinions.
Keep enthusiastic about your current condition, we hope the doctor will deliver good news after you go there. Believe me you are not alone in facing this ordeal, members in the forum continue to pray for your recovery.
Keep us posted as soon as you get any updates from the doctor, we'd love to hear how your condition is progressing.
newbie
Activity: 28
Merit: 15
February 06, 2023, 12:59:04 AM
Although I'm new around here and i just came across this thread i feel sad reading your story and i know that you are going through a lot but I want you to know that God is with you and that your difficult circumstance is only a curve in the road, not the endpoint. I'm sorry, but all I can do is pray that God give you and your family the strength you need to get through this trying time. I wish you'd get better soon.
Thank you, I hope my condition keeps improving as well but my hopes aren't too high so far. I'll see what my doctor says next week and go from there. That's really about all that I can do at this point other than seek different or second opinions.
Tears in eyes….just have faith nothing is impossible for God. keep praying and we are here praying for you as well.
sr. member
Activity: 658
Merit: 441
February 05, 2023, 04:23:09 PM
Thank you, I hope my condition keeps improving as well but my hopes aren't too high so far. I'll see what my doctor says next week and go from there. That's really about all that I can do at this point other than seek different or second opinions.
Hello mate! It been a while I drop by and I just want to check up on you and know how you are doing. it's always good to see your posts, and to know that you are in there and still fighting like a champion that you are. I want you to know that God loves you so much and Him alone has the final say over your life. You're loved and are always in my thoughts and prayers. Stay positive and keep fighting, you're coming out of this stronger and better.
legendary
Activity: 3766
Merit: 4554
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February 05, 2023, 12:14:49 AM
Although I'm new around here and i just came across this thread i feel sad reading your story and i know that you are going through a lot but I want you to know that God is with you and that your difficult circumstance is only a curve in the road, not the endpoint. I'm sorry, but all I can do is pray that God give you and your family the strength you need to get through this trying time. I wish you'd get better soon.
Thank you, I hope my condition keeps improving as well but my hopes aren't too high so far. I'll see what my doctor says next week and go from there. That's really about all that I can do at this point other than seek different or second opinions.
newbie
Activity: 28
Merit: 15
February 04, 2023, 06:50:09 PM
Although I'm new around here and i just came across this thread i feel sad reading your story and i know that you are going through a lot but I want you to know that God is with you and that your difficult circumstance is only a curve in the road, not the endpoint. I'm sorry, but all I can do is pray that God give you and your family the strength you need to get through this trying time. I wish you'd get better soon.
legendary
Activity: 3136
Merit: 1172
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February 04, 2023, 02:00:38 PM
So I explained my case to her. She asked my thoughts and I told her I didn't know what to think really. Her advice was to wait til a Friday after all the doctors have gone for the weekend and go into any ER. Just go in and complain of chestpain and don't tell them shit. They won't look into anything but will do a work up to see what they find. Then I'll be able to find out if this hospital and doctors are lying to me. She said it would be Tuesday before they spoke to any other doctors and by then I'd already have some answers and know whether to trust what's going on currently.

Your nurse suspects that something fishy is going on and she could be right. Am not trying to say miracles do not happen. They do, because God is never tired of doing miracles. But sometimes we still have to double check this things and be sure what we are faced with. We have bad eggs in every institution and we should not look at the medical staff as saints. There are also corrupt ones among them. Follow what your nurse suggested. I pray for quick recovery for you. May God grant you healing.
I keep the nurse's advice in the back of my mind, but not ready to act on anything yet. I did visually see the improvement in my heart scans. Going from 7.2 to 5.2 is pretty amazing. I also see the doctors' points as well as far as transplant cannot be justified at this current time. I want to see how my follow up goes next Tuesday and see what my Doc says.

Ever since i heard about your heart problem, i always wished and hoped you would come out strong from this problem and pray to God that you become healthy very soon.
Good to hear that you are healing without a transplant.  Everyone one of us in bitcointalk pray for you and wait for the good news by the doctor on this Tuesday.

The 7.2 to 5.2 is the size of my heart. An average heart is 5 mine is just slightly above that but no longer enlarged to 7.2. Not sure if it's centimeters or inches but I would guess inches.

I too think it should be inches but the google search shows it is being measured in centimeters.
Quote
An adult heart has mass of 250-350 grams. The heart is typically the size of a first 12 cm in length, 8 cm wide, and 6 cm in thickness.
full member
Activity: 462
Merit: 117
February 03, 2023, 02:26:29 AM
I'm seeing a lot of praise about me still posting while being in the hospital. Do you guys realize what a day in the hospital is like in a critical care unit? You are in bed nearly every single minute of the day. I had to pee laying down. shit laying down, even eat laying down.

Here's my typical rundown in a 24 hour period while being in the hospital.

Get woke up around 730 am to 1 of the residents/fellows/doctors in my room checking on me before the whole team comes in a bit later. 9 am was the 1st med passing. Anytime between 9 am and 11 am the whole team would come in and do their daily check. They would let me know the results of any previous tests and how they want to proceed as well as check me out for any new symptoms. After that, usually within an hour or so of the team leaving my room, labs would be ordered and drawn. My day to day changed a little once I was taken off the balloon pump and able to get out of bed a little, but not much because I literally could barely raise my leg from it being kept straight for 2 weeks. You wouldn't think it but that destroys your muscles. Normally between 11 am and 1 pm I would have physical therapy for an hour. When they were done, they wanted me sitting up in the chair as long as I could stand it.

That's a rundown of the morning, which was the busiest part of the day. After my PT was done, I got a little break from a big crowd in and out of my room but still had nurses in their every 2 hours checking on me up til 6 pm when I would start taking evening meds and sometimes an evening blood draw. You would think they would leave you alone after that, but nope. All night long in and out of my room taking blood pressure, temp, and drawing blood if needed.

So, with me being bothered every 2 hours or so, I have nothing else to do but try to go back to sleep or mess around online. I usually opted to check the forum and see if anything interesting caught my eye and then I'd try to get a little more rest. The hospital is the worst place in the world to try and get rest. Yesterday was my 1st day at home and I actually slept 12+ hours. My body has felt so drained throughout all this and finally I got some rest.

Now on to the healing, or that's what I hope. They have a small fear of this all turning bad and if so, it'll go very bad very fast. Otherwise, I have cardiac rehab to start soon. That's basically exercise at the hospital to try to help strengthen my heart and body. I also will start having appointments to keep an eye on how I am progressing. The struggle is definitely not over, but let's hope the worst is behind us and a transplant is a distant memory.

I understand your point Sir. I know you go through alot everyday at the hospital for daily routine check up and examination so as to further improve in your medication and  otherwise but you know being alive irrespective of the challenges encountered is worth the  praise as it encourages and let you know that there are people out there who really cares about you and would keep checking on you, praying for your speedy recovery and also, cheering you up to stay strong. You are loved here that is why you see our response and comments coming in for you and I believe you too like it so.
Thank God you are home now and will remain focus on recovering speedily. The hospital environment would no more have any effect on you atleast you would have a rest of mind and sound sleep since you have not been able to get the rest you need at the hospital. Welcome home Sir. Be strong as I keep praying for your speedy recovery. God bless you.
legendary
Activity: 3892
Merit: 11105
Self-Custody is a right. Say no to"Non-custodial"
February 02, 2023, 10:23:31 AM
If you had not noticed, one of my habits has been to post walls of text, and to elaborate on topics in which I am interested.. to the extent that I remain interested in such topic.
I have noticed that also. And I admire the time you spend in each of your posts to create such wall of posts. It does not matter what the discussion it is for you. I first observed your posts in Wall Observer thread and it is same way elsewhere. But do you think those who see your posts want to read them to the end every time they come across them? Am only asking a question and please do not take my comment wrongly.

I imagine that an overwhelming majority of members (or even person in the public) do not read my longer posts, so surely I would not mind getting engagement with members on some of my post topics from time to time, but getting engagement or even that anyone cares (besides me at that time) is not the only reason for me to post.  

As you likely realize, creating a post does have the potential to help someone (including someone like me) to either sort through the ideas or to mostly capture how they were (I was) thinking about any particular topic at such moment that the post was constructed, whether anyone else gives any shits or not might be somewhat a side issue.. Sometimes if I look back at my own posts a week or two later, I might not even give any shits - except maybe at the time that I had chosen to post, I had decided that I had given enough shits to make the post and to decide what to put in such post.

By the way, without creating a self-moderated thread, anyone who posts in a public thread like this potentially loses the ability to keep the responses going in the direction that had been anticipated, so surely there are risks when posting about either personal topics or topics in which you might feel strongly because some other members might not be nice to you and/or might not be nice about the topic, might take the topic in a direction that might seem to be of questionable relevance.. (maybe it is and maybe not?), and might have their own agenda that is sufficiently related to the topic, so not easy to even proclaim towards being off topic....
legendary
Activity: 2268
Merit: 18748
February 02, 2023, 08:59:12 AM
My guess would be the 5.2 and 7.2 are referring to your left ventricular internal dimension end diastole, also known as LVIDd. This is essentially the maximum diameter of the main chamber on the left side of the heart, right before it starts contracting for the next heartbeat. Normal range for males is somewhere around 4.0 - 5.5 cm (different sources will differ slightly). This is a very common measurement taken when performing echocardiograms.
sr. member
Activity: 1960
Merit: 329
February 02, 2023, 03:14:22 AM
If you had not noticed, one of my habits has been to post walls of text, and to elaborate on topics in which I am interested.. to the extent that I remain interested in such topic.

I have noticed that also. And I admire the time you spend in each of your posts to create such wall of posts. It does not matter what the discussion it is for you. I first observed your posts in Wall Observer thread and it is same way elsewhere. But do you think those who see your posts want to read them to the end every time they come across them? Am only asking a question and please do not take my comment wrongly.
legendary
Activity: 3892
Merit: 11105
Self-Custody is a right. Say no to"Non-custodial"
February 01, 2023, 10:45:10 PM
You guys should just ask directly what the numbers mean before posting a wall of text that has nothing to do with the numbers.

The 7.2 to 5.2 is the size of my heart. An average heart is 5 mine is just slightly above that but no longer enlarged to 7.2. Not sure if it's centimeters or inches but I would guess inches.

If you had not noticed, one of my habits has been to post walls of text, and to elaborate on topics in which I am interested.. to the extent that I remain interested in such topic. 

When measurements are made of the heart, they may describe the measurements in terms of what a "normal" heart for a person your size should look like, but they also go by your previous measurements (if they have any), so there will be overall size of the heart and then size of the various partitions in the heart, size of the chambers, thickness of the heart walls, and surely some of the measures will be deemed more important than others depending on what your situation had been.. including that you could have overall enlargement of the heart or you could have merely just had a lopsided enlargement, and sometimes it is quite difficult for the heart to stop enlarging once it starts.. and it could be that yours was enlarging due to injury.. or that it was not able to take stress due to some kind of other things going on in your body... or yeah maybe a genetic predisposition, so we could hypothesize about all kinds of possibilities that do not necessarily take us away from the kinds of heart-related issues that someone could have and what someone might study into those conditions if s/he had such a condition or knows someone close to him/her who has a similar condition.

I understand when you are posting about your own condition, then there can be a lot of issues related to how much you choose to disclose, but then some cans of worms could be opened up, and you could decide that you don't want to discuss some things, too...  It seems to me that even though health care providers will attempt to figure out some of your measurements as compared to what they would consider a "normal" measurement of someone of your size, that does not always answer the question since one of the most important measurements would be to measure where your heart was at one stage when it was normal as compared to another stage when it was not, and surely one of the disadvantages that any medical provider might have would to not have good comparisons, because they likely did not measure your heart in any kind of specifically accurate ways while it was normal, but instead started measuring after the problem had already been detected, so they might not be able to see a before and an after in the most ideal way, so therefore they are attempting to compare to what normal should have been for you prior to your having issues, so then later down the road, it seems that they are measuring various states of your heart after it had already been detected to have abnormal happenings (such as the enlarging).. but still even if they do not have ideal measurements, they are still trained to attempt to see what they believe to be progress by comparing two states of what had been enlargement that is lessening...
legendary
Activity: 3766
Merit: 4554
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February 01, 2023, 10:13:46 PM
You guys should just ask directly what the numbers mean before posting a wall of text that has nothing to do with the numbers.

The 7.2 to 5.2 is the size of my heart. An average heart is 5 mine is just slightly above that but no longer enlarged to 7.2. Not sure if it's centimeters or inches but I would guess inches.
legendary
Activity: 3892
Merit: 11105
Self-Custody is a right. Say no to"Non-custodial"
February 01, 2023, 08:34:52 PM
.....though I have no idea what that drop from 7.2 to 5.2 signifies, but the number gap there is pretty big and I believe that in the area of health, - 2 could be a great achievement.
......

I have little to no idea (or guess) what those numbers are measuring either, and surely with any numbers we should attempt to know what is the reference, and then we might have some better ideas regarding what is being described.  

For example they could have to do with some Cardiac Enzymes or Cardiac Biomarkers, and I get confused about the meaning of some of those kinds of measures, even though they could be showing heart health and heart recovery from traumatic events.. .. but still are one of those kinds of measurements what Yahoo was referencing?

https://www.healio.com/cardiology/learn-the-heart/cardiology-review/topic-reviews/cardiac-enzymes#:~:text=Cardiac%20enzymes%20%E2%80%95%20also%20known%20as,myoglobin%2C%20troponin%20and%20creatine%20kinase.

One point that I made earlier regards the need for anyone with any health condition to attempt to learn about their condition, especially when it becomes quite central to some coordination in what a person might be feeling to be wrong with their energy or their performance and surely shortness of breath, chestpain, lowering of energy levels can be signs, yet we might be able to compare how we feel to what we are being told by health care professionals in terms of various measurements that are being shown to us or how those measurements might relate to how we are feeling.

So in that regard, sometimes we can look at the various tests and look up their meaning on the internet and spark us to ask more questions about certain kinds of measurements that are being described as relevant to our condition .. and if we look them up we might be trying to learn more about understanding how the various measurements might be reflective in certain kinds of ways that we feel.. and some of the measurements might be difficult to relate to real world symptoms or feelings about energy that we have...

Some measurements are more understandable and relatable to real world symptoms that someone with poor heart performance might feel.. and frequently I think about left ventricle ejection fraction in terms of how well the blood is getting circulated out to the body.. .. but of course, there could be some other measurements that have similar kinds of meaning - or might shed light on why a person might feel different even if the other measurement (such as the left ventricle ejection fraction) might not be saying anything or might not be changing over a period of time, then we might be able to look at other measurements, even though in Yahoo's case his LVEF seems to be going up and even getting into the upper 20%s and lower 30%s... which is good.. in terms of measuring energy and how well the blood is circulating in his body.. but of course, when it comes down to measurements that might justify how healthy a heart is and whether it is transplant eligible, then there may be some kinds of measurements that are done that show the heart to be engaging in self repair.. and maybe that is what Yahoo meant be those numbers of improvement in the drop from 7.2 to 5.2?
legendary
Activity: 2422
Merit: 1083
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February 01, 2023, 05:32:05 PM
So I explained my case to her. She asked my thoughts and I told her I didn't know what to think really. Her advice was to wait til a Friday after all the doctors have gone for the weekend and go into any ER. Just go in and complain of chestpain and don't tell them shit. They won't look into anything but will do a work up to see what they find. Then I'll be able to find out if this hospital and doctors are lying to me. She said it would be Tuesday before they spoke to any other doctors and by then I'd already have some answers and know whether to trust what's going on currently.

Your nurse suspects that something fishy is going on and she could be right. Am not trying to say miracles do not happen. They do, because God is never tired of doing miracles. But sometimes we still have to double check this things and be sure what we are faced with. We have bad eggs in every institution and we should not look at the medical staff as saints. There are also corrupt ones among them. Follow what your nurse suggested. I pray for quick recovery for you. May God grant you healing.
I keep the nurse's advice in the back of my mind, but not ready to act on anything yet. I did visually see the improvement in my heart scans. Going from 7.2 to 5.2 is pretty amazing. I also see the doctors' points as well as far as transplant cannot be justified at this current time. I want to see how my follow up goes next Tuesday and see what my Doc says.
I am happy to know that there's a great improvement in your heart currently, though I have no idea what that drop from 7.2 to 5.2 signifies, but the number gap there is pretty big and I believe that in the area of health, - 2 could be a great achievement.

Keep doing well boss, we all are praying for you and wishing you a quick recovery and restoration to full heath again, you are a source of energy and inspiration to many out there, you are a winner, never forget that.
hero member
Activity: 980
Merit: 742
February 01, 2023, 05:14:09 PM
I hope your heart is doing better and getting stronger, I’m so happy to hear you are doing a bit better now ! At least those passed days where you didn’t know what’s going on next are over. We all are praying and wishing you a fast recovery and more positive news.
You passed hard days in the hospital now hopefully you will get much rest and feeling normal again keep updating us as always, bless you strong man
legendary
Activity: 3766
Merit: 4554
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February 01, 2023, 02:02:38 PM
So I explained my case to her. She asked my thoughts and I told her I didn't know what to think really. Her advice was to wait til a Friday after all the doctors have gone for the weekend and go into any ER. Just go in and complain of chestpain and don't tell them shit. They won't look into anything but will do a work up to see what they find. Then I'll be able to find out if this hospital and doctors are lying to me. She said it would be Tuesday before they spoke to any other doctors and by then I'd already have some answers and know whether to trust what's going on currently.

Your nurse suspects that something fishy is going on and she could be right. Am not trying to say miracles do not happen. They do, because God is never tired of doing miracles. But sometimes we still have to double check this things and be sure what we are faced with. We have bad eggs in every institution and we should not look at the medical staff as saints. There are also corrupt ones among them. Follow what your nurse suggested. I pray for quick recovery for you. May God grant you healing.
I keep the nurse's advice in the back of my mind, but not ready to act on anything yet. I did visually see the improvement in my heart scans. Going from 7.2 to 5.2 is pretty amazing. I also see the doctors' points as well as far as transplant cannot be justified at this current time. I want to see how my follow up goes next Tuesday and see what my Doc says.
sr. member
Activity: 1960
Merit: 329
February 01, 2023, 01:05:26 PM
So I explained my case to her. She asked my thoughts and I told her I didn't know what to think really. Her advice was to wait til a Friday after all the doctors have gone for the weekend and go into any ER. Just go in and complain of chestpain and don't tell them shit. They won't look into anything but will do a work up to see what they find. Then I'll be able to find out if this hospital and doctors are lying to me. She said it would be Tuesday before they spoke to any other doctors and by then I'd already have some answers and know whether to trust what's going on currently.

Your nurse suspects that something fishy is going on and she could be right. Am not trying to say miracles do not happen. They do, because God is never tired of doing miracles. But sometimes we still have to double check this things and be sure what we are faced with. We have bad eggs in every institution and we should not look at the medical staff as saints. There are also corrupt ones among them. Follow what your nurse suggested. I pray for quick recovery for you. May God grant you healing.
sr. member
Activity: 1008
Merit: 366
February 01, 2023, 01:01:48 PM
I hope you and your family is doing good after all of this. Well as you said, it's not over yet, but soon we hope everything will be back to normal.
A normal, healthy person could get sick after staying at the hospital for a few days, and I can imagine what your family is going through right now. As now, you are back to your home, things will get better for sure. Just hoping for the best and all our prayers are with you. Except for this, I don't know what to tell right now. Get well soon man! Much LOVE <3 Cheesy
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