Topic: My story and where it is now..... - page 11. (Read 7237 times)

In the past several days, I had been considering whether to respond, and if so how?  Or even how much to say about my own personal experiences in weighing related questions.. but of course, each of us have our own particulars that we might not want to say too much, yet I still consider that your story helps in the sense that many of us have got to know you in various ways over the years, and surely some members have had more interactions with you than others.  My path with you has not crossed too often….. yet I can still relate to a variety of the aspects of your situation..  

Surely I feel bad for your situation Yahoo in terms of the relatively early age in which you started to suffer from symptoms (such as close to 40), and then already going through procedures that did not fix the then condition… and then the then condition had gotten worse and worse, as you mentioned.

These kinds of questions that you raise are not easy for any of us in regards to how much we should attempt to account for the advice of experts in regards to aspects of our health and our energies, and they surely do not always lead us down the right path or necessarily present information in a way that helps us to consider the matters in front of us… and surely some of the information in regards to the diagnosis, the symptoms, what to do or even what tests to run or whether intervention might be necessary may well be unknown by the various health professionals too – absent further tests – and then surely complications with medical insurance coverage and/or co-pays is present for a lot of folks too… at least those folks who have potential access to decent medical care.

Many times we also might rightly or wrongly conclude that our body is going to heal itself, and we may also have feelings of invincibility – though when we suffer from a few health issues, we sometimes will learn more regarding limitations to both self-healing and in regards to invincibility – and also various aspects in realizing our mortality may well also sink in only after finding out about some severe condition that we might have that we had not previously considered.

Sometimes we also might not know what we don’t know.. which seems to also be part of your repetitive point in regards to your suggestion to get checked out.. and maybe even diving further into investigations that might be necessary, sometimes for some conditions.

Surely there are other ailments besides ones associated with the heart, yet the heart has some very special characteristics (and limitations) in terms of how well that it may be able to heal itself.. and also that in can start to develop in a direction that attempts to compensate for its limitations (especially if it had been injured) and then ends up leading to its own weaknesses including growing too large in one direction, thinning of the walls, blockage of blood flow that contributes to possible irreversible ischemia (tissue death), scarring, palpitations and perhaps other related difficult to fix matters.  

At the same time, if the ejection fraction on the left ventricle (which pumps blood to the whole body) is not staying above a certain amount (such as 30%, which is still lower than normal) then there will be shortness of breath and difficulties of the blood to circulate around the body…and so in some sense, quality of life already is going down once the ejection fraction gets to those kinds of low levels because of inability to exert yourself, easily tired, shortness of breath and even chest pain and tightness, so it becomes more and  more difficult to keep up muscle mass too (and stamina) which is also more difficult to keep up muscle mass as any of us gets older. The older we get, the more difficult it is to build and to maintain muscle and strength and even to burn calories efficiently.

So normal ejection fraction is between about 50% and 75%, and frequently those eligible for heart transplants would be unable to keep their left ventricle ejection fraction above the lower 20% range, and sure of course, there may well be some other criteria for heart transplant eligibility besides just looking at ejection fraction.. such as just being able to see that a heart is not really stable or recovering….. so getting on the heart transplant list is a pretty BIG deal, and getting into such a state that the Doctor’s put you in a kind of “expedited status” also tells a lot about the severity in which they consider your current heart to NOT be very much able to help you with even bare basic exertions, but any of us should be able to imagine that the lower the ejection fraction, then the more likely that shortness of breath, exhaustion and even other symptom kick in at even lower levels of exertion.. merely going for a walk, or eating some food, and then we may well frequently have seen folks with lower levels of ejection fraction needing to lug around an oxygen tank or even having to wear a defibrillator to shock them in case their heart goes into irregular rhythms… and there are heart pumps too.. but surely seems scary to have some of those artificial mechanisms implanted – and bodies will frequently react towards having internal devices implanted, too.

Sure the punchline advice may well be to attempt to inform ourselves with more knowledge about our conditions and if there might be some things that we need to know in order to make more informed decisions in regards to our health and conditions that we might have or that we might develop and do not engage in conduct that ends up leading to damage that might be irreversible, but I still have some difficulties “kicking ourselves” too much in regards to “ I should have done X, Y and/or Z.”  

But the punchline is still correct in terms of attempting to learn about our condition, and maybe sometimes needing to get tests and perhaps second opinions and also attempting to interact with the doctor more, and sometimes it is not easy to interact with the doctor because we ONLY have so much time to interact during an appointment so we should attempt to prepare ourselves prior to our doctors appointment and maybe researching so that we are able to interact, even if we might not feel that we have a lot of energy, and if we do not prepare ourselves with decent questions, they may not be able to spend time talking with us, or know where to possibly refer us or what tests to run.

….and yeah if we do not follow-up with Doctor’s appointments after we learn about a condition that we have, then we are likely NOT interacting sufficiently enough about our own condition or our own health.. so there is some of that ignoring of the problem(s) that could be happen with anyone including damage and/or irreversible damage, which surely I appreciate that you (Yahoo) had identified that as one of the areas in which you feel that you “could have done better.”  .. even though I still try to consider that it is important to NOT kick ourselves too much about these kinds of bygones, what ifs or even blaming ourselves.... and each of us should attempt to be informed about any conditions that we have when we go to the doctor, and maybe if we are having some difficulties advocating for ourselves and asking questions and interacting with our doctors, we might need to ask that someone who we feel that we can trust attends appointments with us during our doctor’s appointments to help to advocate for us and/or to make sure that we are sufficiently advocating for ourselves, and no matter what none of these kinds of balances are easy for anyone.

I know that I am blabbering on somewhat, and surely you realized a certain level of risk that you might get some responses that may or may not cause comfort.. .and surely not even easy to figure out how much to say.. beyond even what other people have said…

I think that the better of scenarios might be that you are able to get a heart transplant within the expected time-frame in January or maybe February at the latest, and then within a few weeks, you able to start a blog or a forum thread on the bitcoiner with a new heart topic.. that may well be showing progress and recovery.  

So maybe the thread might be: “What’s it like to be a bitcoiner with a new heart?”… and then such a topic (and subject matter, even though usually overly personal) will have become fair game, no?  

Once you started this thread, the cat is out of the bag, no?  

So from here on out, many of us will likely be hoping and perhaps even expecting to be able to participate in trolling you within a dedicated thread on such bitcoin and heart topic… no pressure of course, but it would likely be a good hope to then have the "bitcoiner with a new heart" thread last for many, many years..

maybe until 2072?  A 50-year long thread… I will hope. .

Although I don’t expect to be around that long…. . but you know how so many of us tend to have beliefs that we are going to live forever, too…

I am so sad after reading all your history @yahoo62278, you have more contribution in this forum and helped many people trough become Bounty Manager, actually you have many altcoin bounties worth and helped many people earn much money trough joining with your campaign. I believe one day after darkness there must be light with your healthy problem.

Controlling your activities, don't forget exercising and exploring your hobbies maybe can help how focus with your recovery, everything have possibility and you have chance get healthy back.

Hello dear manager @yahoo62278 after reading all this stories i don't even know what to do either to cry or not but believe you will be healed before January, although i don't know your belief ( your religion) to be Christian or Muslim). I have been healed from Heart Growth, Peptic ulcer, including a motor accident that i was not able to walk then though i never wanted to reveal anything about myself but your story kept me bleeding which made me to open it up to you whether if you could connect your faith to get healed.
After i tried all, i went through hell as my father left me at age 4 (died) and life was so hell for me, you know what it takes for a little boy growing without a father. To cut story short, it was a great man of God that prays for me and i got my healing instantly without anymore medications. actually is been 14 years i pass through all this hell.

Please take a little time to browse about Pastor David Ibiyeomie
He will pray for you and you get your healing instantly believe me sir. All his call line can be found on his google profile or Wikipedia, or possibly from his social media handles. Always check a verified tag or checkmark on his profile.

Note; We are looking for a way to get you healed from this affliction, Admin do not delete my post please he needs to get his feet back.

@yahoo62278, I am not sure how I should write my feeling. I won't be able to explain how I feel after reading the entire post. I had almost no interaction or very little interaction with you. But I feel like I have known you for a long time. I am no one here. But you are worthy here, and I believe everybody cares about you. I cannot do anything special for you except wish you the best of luck. Forgive me if I hurt you during my forum days.

What?
What did I just read?
Many people are passing through different challenges of life, but if the person can find time to drop a post here we will feel that all is well.
I only had idea of your ill health when you mistakenly accepted a campaign participant twice in same campaign and someone made a joke about you being drunk and posting. Until you clarified the situation that you were working from hospital bed.

Be courageous and avoid fear, fear kills faster than death. You will overcome. Shalom!

I don't know what to tell ya. I'm sure you guys will know as I speak with a few members on telegram almost daily. If they don't hear from me within a certain period, they'll probably be able to confirm.

Thanks

I'm sure I at least have a fighting chance. They don't let morons become doctors although malpractice does happen. Regardless I feel ok with whom I have.

Thank you

Well said

Yea my wife will be quite distraught for a bit if things were to go bad.

 Thank you. The address in my profile is where to send if sending anything. I only want to use the 1 address since I don't mess with any of the rest. People are free to send or not.

Thank you

I pray to God that you will quickly find the best heart donor for you,, besides that it is very likely that your character will be influenced by the nature of the donor and hopefully you will continue to actively contribute to this forum. I will give a little buck to you later, hopefully it will be useful for you and also the family that looks after you.

I have sent my little support to you

you can check my DM

I promise to have a routine checkup starting next year because you yahoo62278. You sent a clear message to us to seriously take care of our health. Given your current state, I felt honored when you responded to all of our posts here. Bud, you don't have to respond to all of us. We have your back. I hope we improved your mood and morale in some way.

I know that you said not to send money to the bitcoin address in your profile, especially to people who do not have a lot of money. But $10 or $50 won't change a fortune and this is the season of giving, specially when you contributed big in this community. If you may, please provide a Tron and BSC addresses too.   

It is really kind of you to mention you have read all the posts, I think we all were fairly sure you would be doing that considering the outpouring of support towards you. You do not have to explain about the text size of the replies, I think we all understand about that.

The most important thing is for you to focus on your health. We understand you will not be able to post regularly in the coming days and to be honest nobody is expecting a running commentary either. The positive messages being sent your way will no doubt continue and most sending them are not expecting one to one replies considering the scale of the thread.

I really appreciate you have taken more than one opportunity to advise us to get checked and that is the best message you could have given. I sincerely hope members here do start booking appointments. Your health comes first, take it easy and try to relax.

The fact you should prioritise any spare time you might have with your family over the forum over this difficult period is another thing we all expect. Just take care of yourself and try to remain as positive as you can, hopefully everything will be fine.

It's not easy in this situation to ask your wife to expect the worst while hoping for a miracle or something like that, and I doubt his wife would care about some anonymous people on the forum, this would be the last thing on her mind, the only hope of the forum getting first hand information incase anything goes wrong if there is someone from the forum who knows him outside the forum or has any close relation with his family. If anything were to happen to me, there are a few people in my community who I've met in person who are fully aware of my condition and would notify the forum if anything went wrong. Yahoo, your faith will keep you...

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It's always better to have a close relationship with one or two people from the forum because it helps in times like this. I remember when we lost Becky666 last year due to health issues, we were able to contact and support his pregnant wife and family through one of his close friends on the forum. ^{i appreciate your messages but we are in for Yahooo, I will be okay.}

Absolutely. Donor hearts are a scarce resource. They wouldn't be offering one to yahoo if there was any doubt about him being too old/frail/unwell to make it through the op and the recovery process.

As I mentioned to yahoo privately, I obviously can't give out personal medical advice, but I'll be waiting a bit longer than a week before reaching any conclusions. Its fairly normal after a heart transplant to spend some days sedated in intensive care, and then several more after that before you will be in any state to care about this forum. And complications which can delay this, such as infection or further bleeding requiring a trip back to the OR, are often treatable and don't mean the worst has happened, just that it takes longer to get through it all. Focus on you first and your family second. We'll all find out when you're ready.

although I don't really know you but I have known your name for a long time in this forum.
the story you shared made me motivated and have the thought that there is nothing more valuable than HEALTH even if it is money.
I am a little emotional and shed tears after reading your story.
I know you are a great person who will get through this and your name is in my every prayer.

keep spirit my friend, you can definitely recover and spend happy days with your wife.


I plan to give my signature salary next week as a donation. maybe not much but at least I can help others in this forum

Well, on an optimistic note I want to say that I know and have known throughout my life people who had complicated heart operations, in some cases several, and came out without sequelae, living many years later and dying at almost 90 years of age, like an uncle of mine, or people I still know. I do not know anyone who has had a heart transplanted, though, which I understand adds a degree of difficulty.

Best wishes to yahoo62278 in this regard.

Another thing is that it is logical and rational, to consider what happens if it goes wrong and leave things prepared in case it does. None of us really like to think about it but it is the best thing to do.

All will be fine, keep the hopes up brother.

That's the worst-case scenario of course, but assuming you get a donor sooner rather than later I'm not projecting that--but what you wrote is exactly what I meant.

Your wife might not immediately want to reach out to the community, but if she isn't already aware that there are a large number of people here who're rooting for you and care deeply about you and your surgical outcome, might I suggest that you fill her in?  Should the worst come to pass, she might eventually come around and reach out to everyone here.  Reading what I just wrote sounds selfish, but speaking for myself only, I'd like to know what's happening/happened either way.

I think Zepher's family did something similar, and I know Bruno basically let the forum know he was dying.  A'ight, no more morbidity.  You've got age on your side and a lot of years yet to live.  Dr. Leo might correct me if I'm wrong, but age is one of the factors that goes into the heart donor waiting list.

And if this was coming from pretty much any other member than you, I'd be as skeptical as my username implies.  Everyone is free to think what they like, but I believe you and I feel like I'm sitting beside you just waiting for that phone call.

I wanted to write this as a separate post so please don't report it for back to back or whatnot. People will see me replying and might skip over it and not see what I'm going to post here.

I have read every single reply to this point and will continue to do so. I have also quoted and replied to every single person because they took the time to read and reply to the post. I think it is important that people know I read their words. Some only got a thank you and some got a larger reply. That in now way reflects on how I may feel about a person. It just depended on if you asked a question or posted a condition of your own.

I have also sent some merits out but will now stop with that. I want people posting here because they care, not because they want to get a merit. Not sure if anyone is doing the latter, but I see people posting suspicions.

I do appreciate all of you who have taken the time to reply to this point. If you haven't made an appointment to get checked, please consider doing so.

Thanks for the words my man. o_e_l_e_o has reached out and offered to chat and help anytime I feel I may need to chat. Very nice person. It took me a couple times but I think they have finally gotten me to the right doctors. Doesn't make anything less scary but it does make me feel I have competent people working on my case.

Thank you

Thank you

Thank you

Thank you

Thank you

Thank you

Thank you, Yobit was a challenge and a job that the community appreciated. I thought I did a fair job but others disagreed. It is what it is. I do appreciate you taking the time to make this post and wish me well. I also appreciate the donation!!! Every little bit helps.

I am logged into the forum anytime I am awake. When you're lying in a hospital bed(sometimes high outta your mind) or even at home healing, you have to find ways to keep yourself busy. I couldn't exactly take myself out to lunch or anything, so I used my time to browse the forum and some things make me curious. So, I started asking questions.

I have no idea when I will get the call for the new heart. I will be admitted to the hospital on Jan 4th after a heart catheter(had about 5 of those this year already). I could get a call 1 hour later or it might take 3 months. On average the doctor said 2-4 week wait. Averages aren't exact, they are just an average.

I will try to post when I get the call. If not maybe I can send a message to hopenotlate or condoras and they can post here for me. Then everyone will know i'm going to surgery. Assuming I live i'll be online within a few days. I may not post much the 1st few days but i'll be online. From how I felt the last surgery I won't wanna hold my phone up the 1st few days. If i'm not online within a week of the surgery happening, it's safe to assume things went bad.

My wife may login to my account and post but I doubt it. She will not be in any shape to care about letting all of you know.

Thank you

Thank you

Thank you


I wish I was rich. I'm rich in the sense that I have a great family life, but not monetarily. Thank you for the prayers

Thank you donation received. Thank you for reaching out on telegram to confirm as well.

Thank you. I've had many procedures done while awake. It's no fun watching them poke or cut on your body. Everything is fine now?

Thank you for confirming. Yea I don't need to post every procedure or things like that and I will mostly keep my private life as private as I can. I definitely wanted to inform the community of what's going on though.

Thank you, I definitely agree that that is how people think. They would be wrong.

Thank you

Thank you

Thank you

Thank you

The fact that you are sharing this with us means you think of us as a family. And we do the same too. This community is a family where we are for each other.
This hardship that you are facing right now will go away one day, for sure, and we will have our old man back. Praying for you from the deepest corner of my heart. As a Muslim I am going to say 'May Allah grant you the best health, Ins ha'Allah you will recover soon'.
We all want you to be healthy again. Lots of love from everyone and prayers will always be with you.

no one actually knows how or what is going on with people until they truly open up and share a little insight to their world. Sir in your story shared, i must say truly you are a real fighter and have fighting ever since to outwith the snears of life. As i read your story i felt really sad because life has not been all that fair to you. Life is just full of surprises and changes  so i pray that it surprises you and changes your whole situation for you in a good way. Sir hope you get well soon and recover with speed as you have been and still a figure of impact to the life of many other people around. Wishing you a speedy recovery sir.

This is really touching , only people that has in one way or the other gone through major surgery will really understand and tell the pains involved.
God will help you come out this situation successfully and you will equally share the testimony here , wish you good luck in your surgery and once again you gonna be fine and become healthy as supposed.